A national platform connecting people with lived experience of HIV, hepatitis B and hepatitis C with opportunities to shape and participate in research.

There is growing recognition that people affected by blood-borne viruses should play a central role in shaping the knowledge, priorities and decisions that impact their lives.

People with lived experience bring vital, firsthand knowledge to important questions, such as:

• How do legal, social and healthcare systems work in practice?

• What barriers exist?

• What changes or reforms could help make a difference?

Despite this, many people are unsure how to get involved in research, and many projects struggle to reach participants – particularly people from social groups that have historically been underrepresented.

 The LIVES Panel is a simple and ethical platform to connect people with lived experience of blood-borne viruses with researchers. It allows individuals to hear about research opportunities as they emerge and then decide whether to take part, supporting more consistent, community-informed research.

How the LIVES Panel works

For participants, registration to the Panel is a one-off process that takes around 5 minutes. This involves completing a short form with a small amount of personal, non-identifiable information and a preferred method of contact. If research studies become available that match your profile, you might get contacted and can then decide whether you wish to take part. Your information remains confidential and safe.

For researchers, the Panel provides a structured, ethical and efficient pathway to connect with potential research participants. You can contact us to find out more, or submit a request to use the Panel to the LIVES team.

Interested?

Choose the option that best describes you to learn more.